"I'll Hold Your Story, I'll Be Your Mirror" by Richard Elovich
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If in the nineteen eighties and nineties, many of us as artists and
activists tried to respond to AIDS as a crisis in our lives, today the response is
radically different. AIDS is no longer a crisis if only because by
definition a crisis can't be life long. More importantly, we know there is
not one epidemic but multiple pandemics with multiple epicenters.
We don't even have to go to the African continent to know that. In New
York, multiple epidemics co-exist in the five boroughs. In Mott Haven, when one in
four residents were infected, neighborhoods were transformed by AIDS.
Someone described it as a slow motion nuclear bomb going off. The epidemic
among poor Latinos spanned neighborhoods in New York and San Juan. The
concept of the airbridge between New York and Puerto Rico helps us
understand what geographer David Harvey meant when he talked about the world getting
smaller, the globe shrinking, time compressing: distances. At the same
time, the epidemic among gay men is fractured and fragmented. While infection
rates among young white men hover between 3-6 percent, among homosexually
active young Black men, it's nearly twenty percent. Picture nearly one out
of five young Black men under 22 years of age already infected. Not one
epidemic, but multiple pandemics with multiple epicenters.
Looking at the role art might play in relation to the AIDS epidemics, we
ignore at our own peril the structures of society that make the epidemics
move the way they do. Sociologist Manuel Castells describes how capitalism
is in transition from an industrial to informational mode of development. Most
of us know this because of our email or palm pilots, but the well-connected
hook up through clearly defined interests that bind them, producing new
forms of social exclusion and inequality. Disconnected and polarized populations
are left in what Castells describes as "black holes" of informational
capitalism--inhabitants of Mott Haven and Africa are superfluous. Instead
of informational capitalism, many rely on survival economies--Castells calls
them "perverse economies"-- including drug trafficking and sex industries.
And as trafficking economies penetrate communities and the globe, so does
AIDS.
In response to the AIDS epidemic, I myself changed from writing and
performing plays- I received a NY Performance award, a "Bessie", for a solo
play in 1992--to working in and attempting to open new thinking in the fight
against AIDS. My AIDS work has spanned the gamut from organizing illegal
needle exchange and harm reduction services around the city, being a member
of both ACT UP and the art collective Gran Fury, to creating GMHC's first
substance use counseling program and directing the organization's efforts to
rethink HIV prevention strategies for a younger generation.
My engagement began when as a representative of ACT UP's Treatment and Data
Committee in 1989, I heard a researcher dismiss addicts as a "non-compliant
population" while explaining why they were not represented in clinical drug
trials. I remember standing up in an auditorium at the New York Academy of
Medicine, not three blocks from the methadone clinic where I had been a
client seven years before, identifying myself with other addicts and
challenging this notion. I'd stood often in front of audiences as a
performer, but never before as a heroin addict in recovery. But I was
moved, because underneath the jargon of "non-compliance" was a belief that drug
users couldn't be helped until they stopped using drugs. I knew from my own
experience, bouncing between methadone maintenance programs and detoxes,
that stopping drug use was a long process. In the midst of the AIDS epidemic,
focusing only on the end of that process meant that tens of thousands of
drug users, their partners and their children would lose their lives.
When the city's pilot needle exchange program became so politicized that it
was shut down in 1990, ACT UP founded an illegal program, jokingly referred
to as its longest running civil disobedience. Operated entirely by
volunteers, we performed weekly going out to distribute clean needles,
condoms, and bilingual information about health services to thousands of
injection drug users at risk for AIDS in the Bronx, East Harlem, the Lower
East Side and Brooklyn. Our services were informed by the theory of "harm
reduction," the belief that change is not all or nothing, and that even
incremental changes could be valuable in helping people save their own
lives.
The next phase of the performance was in front of a judge. I along with
eight other AIDS activists, including Gregg Bordowitz, here today, were
arrested when we openly challenged the law that criminalized needle
possession. We based our defense on the legal principle which held that the
minor legal harm of needle distribution was justified by preventing the much
greater harm of drug users and their families dying of AIDS. We couldn't
take the judge out to see needle exchange, so we needed to bring experiences
of the drug users, the reality of the sharing of needles and drug users'
lack of access to effective treatment, and the concreteness of our intervention
into her courtroom. Listening to our array of expert witnesses and our
collective testimony, the judge agreed, finding needle exchange to be a
justifiable medical necessity. Our legal victory didn't change the world.
In fact, ten years later, the Federal government still refuses to lift its
prohibition on needle exchange.
Today, the artist needs to grapple not just with her or his own
individuality and identity, but with the forces shaping the world in which we live. As
patriarchal family structures break down without new collective structures
moving in to replace them, there is a preoccupation with individualism and
identity to anchor people and give meaning to their experience. Identity,
particularly among feminists, lesbians and gays, has been a powerful force
for organizing and structuring responses. Artists, too, have clung to our
individual or natural account of who "we" are. But a problem with identity
is that it provides us with a segmented way of viewing the world. We see
problems in terms of problems that are mine versus problems that are not
mine. We cannot create an effective response to the epidemic based solely
on our preoccupation with our own group. We need a different way of
understanding our existence in the world and the world that is going on
around us.
Medical anthropologist Richard Parker, who works in Brazil, has talked about
notions of solidarity, in which he is describing the capacity to relate to
the problems and suffering of others as if it were your own, as if it were
directly relevant to you even though you are not them. Solidarity is an
understanding of yourself that includes them. Solidarity would allow us to
join them and see their problem as our problem.
How does this relate to questions of art and activism? An example might
help. Gran Fury was an art collective of AIDS activists. Most of us were
members of ACT UP and a few were members of the group that created the logo
Silence Equals Death. Recognizing both the art world's powerful connections
and its appetite for consuming controversy, Gran Fury used sophisticated
advertising strategies and art world connections to detonate political
consciousness in spaces where demonstrations were not invited. When a
public bus company refused to allow Gran Fury's panels of "Kissing
Doesn't Kill, Corporate Greed and Indifference Do" on the sides of buses,
the ensuing controversy provided sustained media coverage and public debate
about discrimination.
Gran Fury's infractions--picturing gay and interracial kisses, as well as
corporate criticism--may seem dated and even quaint after media coverage of
the Clarence Thomas hearings, the OJ trial, and decision by "The New York
Times" to reprint the term "blow job" from Kenneth Starr's exhaustive
report on Bill Clinton's sex life. But if the question for those of us
going to art school in the early seventies was thinking through what art was, in the AIDS era it
has meant challenging the notion of what the artist is and art practice is,
where she works, who she works with, and how cultural production happens in
multiple use spaces rather than just in art spaces.
When rhetoric about inequality and inclusion has become so acceptable within
established systems of power that grantmakers fund artists to retell stories
of oppression, maybe we ought to consider camouflage architecture to reveal
stories of agency or resiliency-stories where insurgent movements manage to
resist or get out from underneath oppressive realities. Sometimes artists
look like artists and sometimes they don't. Sometimes art needs to look and
happen somewhere else. Sometimes artists look like producers, facilitators,
investigative reporters, teachers and ethnographers introducing audiences to
new voices, new accounts, or new interpretations in an effort to produce
what anthropologist Margery Wolf called not new truths just "less false" stories:
ones that preserve tensions, present us with contradictory voices, a range
of interpreters, and that put off premature closure.
Artists can be facilitators. Despite silences around sex or being
inculcated into normalcy, most of us, when we were young adults found or created
opportunities to have sex, to explore pleasure and to try on different roles
with each other. Depending on the era and the culture, we may also have
experimented with everything from cigarettes to various mind altering
drugs. What we didn't have, and what young people today don't have, are the
opportunities to talk about it, frankly and realistically. Providing people
with opportunities to create their own language for their experiences and
desire, to be conscious of what they are doing, what they desire-the
meanings, the relationships, the choreography: that's culture.
A few years ago I met Angie, who considers herself a gay man. She had taken
on the role of videotaping the history of a Projecto PAPI, a group of gay
and bisexual Latino immigrants in Jackson Heights, Queens. She taped all
their gatherings and activities. Every once in a while, she invited
everyone over to her apartment, where she cooked for them and they sat around
watching themselves on TV. To paraphrase photographer Nan Goldin, she was their
mirror; she held their stories. Her watching them, made it real, made their
lives feel watchable, valuable and important. I have seen other men do the
same with an oral history project, sitting for each other as they related
their experiences of sex and desire. "A lot of the guys say they feel like
they've just shared in something sacred," observed one participant. "Within
minutes of listening to my guy, my back straightened up. I thought, 'Okay,
this is real, something's happening here.'" That's culture production.
That's art. In many communities, particularly those hardest hit by AIDS,
there are enormous silences that need to be questioned.
Soul Food, a group of Black gay and bisexual men, encouraged by the success
of their "house calls," where one member opened his apartment to other
members to talk about being in the life, they wanted to put together a
subway campaign to do three things: act on the epidemiology to promote the value of
not waiting until you are in the emergency room to know your HIV status, to
let people know where they could get tested free and anonymous, and to make
their group more visible. When they discussed the project among themselves,
they identified as a major obstacle the fact that a positive test result for
a Black gay man meant there was another secret he had to keep from his
mother, like his being gay. Something else that might keep him feeling
isolated and alone even from his family and community. They brainstormed
the idea of having the campaign feature a Black woman, a mother as the mediator,
acknowledging her special closeness to her son, her ambivalence about his
sexuality, but her determination that he both stay healthy and get the
support he needs from other gay men. Like many things for Black gay men it
is both too late and too early. Too late because campaigns like this picturing
Black gay men within the context of their families and communities should
have been done over a decade ago, and too early, because it is still
bringing issues up that people would prefer to hush up.
I think back to a subway campaign I did with Gran Fury, which was also
featured in museums. Why was one poster considered art, and the other
wasn't? At GMHC, I worked with two other former members of Gran Fury to
create a magazine "b.2K, Beyond 2000," which was part of a grassroots effort
to mobilize more than 2000 young gay and bisexual men to get involved in
HIV prevention in their communities. b.2K had different groups like PAPI,
Soul Food, and the vogueing scene's House of Latex. We were challenging the
notion that any community was "hard to reach." As one young man in the ball
scene said, "we are not on the margins anymore, we are creating new
centers." From the various scenes, we produced photographs, high art and low
art, photo shoots and snapshots, oral histories, advertisements, HIV
prevention, and transcripts of conversations for the magazine. Just as
Gran Fury applied sophisticated advertising strategies to getting AIDS
propaganda into art spaces and onto bus sides and shelters, savvy art
production pumped up dissonant beats into a slickly produced package that
got into the hands of men who were unlikely to
pick up a health brochure.
When we looked at the finished product, we said we should have called the
magazine "Utopia," because it pictured a community that doesn't really
exist. If you as an individual don't pause for a breath the video-editor
can't splice your quote in the tape. But collective means you can do things
together that you couldn't do alone. Several hundred chanting in
solidarity with good visuals, when magnified by TV cameras or radio mikes,
can look like thousands until the thousands watching their TVs finally
arrive for the next demo. That's how you built a movement. Picture utopias.
Now that is art.
Richard Elovich is a doctoral student in sociology and public health at Columbia University.
The symposium "panelists'" -
Richard Elovich, Gregg Bordowitz and Sarah Schulman.
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